Ok, here goes !! What a busy week !! Remember neighbor, Cathy ?!?!? Okay, well I am still helping she and Jason. I spent all day with them, where my surgeon is, 90 miles round trip, on Tuesday. She is still having 'female' problems. The urologist wanted to do a peek and see into her bladder. I will save you the long story and cut to the details, we left at 10:00 and got home at 8:00 on Tuesday. All is good. Nothing found !! :) On Wednesday, spent the day in St. Louis, left at 8:00 and got home at 5:30. Roy had an appointment with the surgeon who did his head and neck surgery. No lumps and no bumps !! Can you say happy ?!?!?!? He doesn't seem him for two years !! Had 2 1/2 hours between appointments, we ran to my favorite store, Catherine's, real close to Washington University. They had all of there 'new' end of the summer clothes, markdown and then another 40% off !! I got a cute shirt, jacket and pair of paints !! It is going to Florida with me !! Thursday, I had an appointment and running around like C R A Z Y for my mom. Buying her Christmas cards, paper, eye drops, stamps and stuff like that. Also, breakfast bars for me and a few snacks. She hasn't been to the grocery store since I left in August. All of her meals are provided for her. But, she likes to eat breakfast in her room. I know all of the stuff that I bought for her before I left is gone and I know she doesn't go down to eat. I do send her a box of food a month. So, in other words, I can't wait to get down there to access this whole situation !!!!!!
Back to Thursday, I saw my psychiatrist. Remember, I am bipolar and was having some mania problems. All is good and I am fine. Just taking my mood stabilizer. :) But, I did say..... that he had gotten the high speed internet, and I was really... really spending tooo much time on FB. We talked about it. He asked how much?!?!? I will just say... that is what a lot !!!! So, you won't see me much on FB anymore, at least for a trial. I really genuinely care about people and I have this 'thing' that I have to check FB to see what is happening. We all do it right ?!?!?!? I even check when I get up in the middle of the night to go to the bathroom !!! So, enough is enough !! I am going to spend more time blogging !! :) I am not leaving FB, but not checking in so much or frequently. Also, on our plan with high speed internet plan, that he currently have, I am only allowed 5 gig's of allowance a month. That is a lot. But, I did go over my first month !! Too much online time !! I have a friend who also has this and I told her, she said she never comes close, asked me how many games and movies that I downloaded and I didn't do any of that !!
Oh, I know I am jumping around. But, remember my Mom doesn't know anything about my breast reduction surgery !!! What do you think she is going to say ?!?!?!?!! Any ideas ?!?!?! I see her this Tuesday at 3:00. I went from a 40FF to a 40B !!!! Okay, let's play a game and let's see who guess's what she might say ?!?!
I had a friend suggest to me to call Mary Kay to see what I could do with all this product that I have. I did and I can return it for 90% of my money !! I got the form today, so when I get home, I just have to take inventory, sign the paper that I am giving up my Mary Kay thing and returning my inventory. I am so happy !! I just have to talk to my director. I will cross that bridge when I get home.
Ok, I have something else I want an opinion on. I hope this works !! When I was in Florida, I bought this wig. Above. See my wonderful SIL, Jane. She met me at the airport when I got back just to take a picture of me in my new wig that I got.
Since I have been home, I have gotten this one, above. See, flat chest ?!?!?! LOL Ok, my mom doesn't know that I have this one. She will probably hate it, that is just the way she is. She hated the one above it. But, anyway, I am going to take tons of pictures and I don't want to freak people out, 'if' I put them on FB, (why should I care?!?!), so, which wig should I wear ?!?!?! (See, the least I tell my mom, the better !! I have learned this since the last few months.)
and... least but, not last.... yesterday was the weigh in for the VIRTUAL BIGGEST LOSER COMPETITION !! My friend, blogging buddy, and FB friend. Lauren, is hosting the contest !! There is a monetary prize for the virtual biggest loser at the end. I am suppose to weigh in each Friday and say if I loss/gain/or stayed the same. But, next Friday I am in Florida and my mom doesn't have a scale. So, I will weigh in in two weeks.
So, to recap, you probably won't see me on FB as 'frequently' or as much. This is really going to be H A R D !!! I really am like a druggie with an addiction. What do you think my mom is going to say about my breast reduction ?!?! What wig do you think I should wear, the one my mom knows that I have, or my new one ?!? (Remember, I am just asking because of pictures on FB)
Thanks for your opinions on this post !! :) I will do a post while I am in Florida. Oh, my mom doesn't know that I blog !! LOLOL
Showing posts with label About Me. Show all posts
Showing posts with label About Me. Show all posts
Saturday, November 6, 2010
Wednesday, October 27, 2010
6 Things About Me That You Don't Know
- Everyone is my immediate family calls me "D". I don't know who started it !!
- I have had just one furry baby. I would love to rescue another one!!!!
- I seriously over exclamate! It’s one of my worst habits!! (Have you ever noticed that ?!?!?) :)
- I am at my best under pressure, but then I just get overwhelmed. Then I am not good to anyone.
- I am a PC.
- How I actually met, Roy! I don't think anybody knows !! Does anybody have any guess's ?!?!
Have a great Wednesday !! :)
Sunday, October 24, 2010
Feeling So Much Better
Thanks everyone for your concerns !! Medicine does work miracles. It is only for short term. I have never been depressed in my life. Hard to believe, huh?!? Especially after all I have been through. I have had my moments, but I am usually very uppity up, positive and love life. I just have a minor bump in the road with my bipolar in the end of October and the first of November. I have since I have been diagnosed. I have a great doctor and he knows what to do !! I love you Dr. R. !!
Also, if anybody reads this and you use Mary Kay or know of someone that uses Mary Kay, and wants to get stuff 50% off. If I have what you or they need, you can get it from me for the 50% off. Plus the shipping charges to get to you. Let me know if you are interested. I have lots. Stock up and SAVE !!!!!!
Also, if anybody reads this and you use Mary Kay or know of someone that uses Mary Kay, and wants to get stuff 50% off. If I have what you or they need, you can get it from me for the 50% off. Plus the shipping charges to get to you. Let me know if you are interested. I have lots. Stock up and SAVE !!!!!!
Thursday, October 21, 2010
It Is That Time Of The Year
I hate this time of the year for me mentally. I am bipolar and for some reason, exactly every year this time of the year, the end of October and the first of November, I really become very manic. I have been up for two days with no sleep. So, I called my doctor today and he called me back and I have to go back on Seroquel XR. This medicine 'should' really help slow me down and help me sleep. BUT, one of the huge side effects is weight gain !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Can you hear me ROAR ?!?!? But, knowing this, I 'hope' I can control it, but he is starting me on 200 milligrams. That is a high dose. But, I have to sleep and I have to slow down. He said he hopes that it will only take two weeks for me to cycle through this. When he called me back and I said, guess what ?!?!?! He said, "Well, Dawn, it is and I said, I know it is October." I just hate it. I do fine all of the rest of the year on my mood stabilizer. But, for some reason, I have one hell of a time for about 3 - 4 weeks. I sure hope this is only going to stay around for two weeks.
Friday, October 8, 2010
Old Email Excerpts
Wow... I am up late !! I was going through cleaning out my inbox !! It is a mess. Just some excerpts from emails though out the past year !!
1/25/09 ~
2/20/09~
Just remember, "they" say that:
Of all the thing you wear, your expression is the most important.
The pursuit of happiness is the chase of a lifetime
The heaviest thing you can carry is a grudge.
The best vitamin for making friends..... B1
The happiness of my life depends on the quality of my thoughts
One thing you can give and still keep...your word.
One thing I can't recycle is wasted time.
A mind is like a parachute...it functions only when open.
Friends are like balloons; once you let them go, you might not get them back
3/6/09~
1/25/09 ~
I have had the stomach flu and diarrhea for a week. I am going to physical therapy and I am using a walker to help from falling. So, that is what is going on!!!!
Just remember, "they" say that:
Of all the thing you wear, your expression is the most important.
The pursuit of happiness is the chase of a lifetime
The heaviest thing you can carry is a grudge.
The best vitamin for making friends..... B1
The happiness of my life depends on the quality of my thoughts
One thing you can give and still keep...your word.
One thing I can't recycle is wasted time.
A mind is like a parachute...it functions only when open.
Friends are like balloons; once you let them go, you might not get them back
3/6/09~
Dear Dawn:
I don't know if you're home or not, or at your mom's, but I wanted to
let you know how VERY SORRY I was and am to hear about your dad. I know
this is a very sad and extremely stressful time. Just wanted to touch
base and say I Love You, and hope you're taking care of yourself as
best you can.
2/27/10
I saw Dr. Schwartz on Friday. I am very anemic. Counts are extremely low. I have CBC done in 4 weeks. If they go lower, I will either get units of blood or see a hematologist or both. I tell ya.
5/13/10
How are you doing ? I am doing ok. I got a call from Dr. S's office (Pulmonary - methotrexate) and they will NOT change the dose or how often I take it. (Once a week) Too dangerous for the Wegener's to come back. She said that the hematologist will have to do something else for me. I see her in a week and a half. Mom's knee is not doing very good. She said she will be having it replaced this winter. I will keep you posted, for sure !!
Just had a weird thing happen to me on FB. I guy that I dated in STL... asked to be my friend. I didn't do it. I did click to see his picture (lol) and MY picture was there !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! He just started FB today and he had 30 friends. I reported him and blocked him. I don't like being stalked !! At least I put my city as STL !!!! I had to call the police when I lived in St. Peters, MO, and have him removed by the police because he fell for me so hard and wanted to marry me after a month !! NUTS !! I had just gotten divorced and wanted nothing to do with it!! He bought a cell phone from me when I sold them in STL. Of course, I was nice and friendly and got myself in a HUGE mess and then today on FB.... oh, the joys of life !! lol
517/10 ~
I see !! Yep... those were my 'severe' maniac years when I would be up for nights and days making stupid tags !! Have nothing to show for it today. I don't even have paint shop on my computer anymore. lol My back gives me fits if I sit here too long. Have a good afternoon and evening.... 'talk' to you later..... My back is killing me from sitting here for two hours. lol
5/18/10 ~
Hey D! Or maybe I should remember to call u “A”. The pictures of you are great! Way to go! I don’t remember the last time I saw you in flip flops. You definitely have worked hard and you look marvelous! Great job! We just got home from the baseball game. Patriots won 12 to 2! A Forest Park kind of day planned for tomorrow…..a picnic, the zoo, science center and another baseball game at 7:40 should fill up our day tomorrow!!!
5/13/10
I have an Ativan withdraw headache from hell. I can hardly see straight or think straight. UGH !! It will go away in a couple of days. I will come up with something to write today or tomorrow. I hate decreasing medicine !!
6/5/10
Ok... here goes !!
About me.... I will be 47 the end of this month. 25 years ago I was diagnosed with Wegener's Granulomatosis. It is very rare. The life expectancy with this auto immune illness is five years. I keep going !! For the treatment... I have to take steroids and chemotherapy. I take the chemotherapy by mouth. I am now on a regimen of taking it on Saturday's. It wipes me OUT !!!! It has effected my lungs. I was really sick for 6 months. I could of had cancer, rocky mountain spotted fever... or this really rare disease.. and I had the really rare disease. I live with it every day of my life.
About me.... I will be 47 the end of this month. 25 years ago I was diagnosed with Wegener's Granulomatosis. It is very rare. The life expectancy with this auto immune illness is five years. I keep going !! For the treatment... I have to take steroids and chemotherapy. I take the chemotherapy by mouth. I am now on a regimen of taking it on Saturday's. It wipes me OUT !!!! It has effected my lungs. I was really sick for 6 months. I could of had cancer, rocky mountain spotted fever... or this really rare disease.. and I had the really rare disease. I live with it every day of my life.
I have struggled with my weight for a long time. I have been on steroids for the Wegener's for 25 years. I am only on 2.5 milligrams daily. My highest was 70 milligrams daily. That really made me gain my weight.
When I lost my weight... I weighed over 400 lbs. I was a sad sad case! I fell a lot. I couldn't hardly stand for a long period. Showers were hard on me. I had to get pedicures because I couldn't cut my toe nails. I had to have a raised toilet seat... I couldn't get off of the toilet. I walked with a walker and/or a cane. I had no muscles.. it was ALL fat!! I tried to have gastric bypass surgery. My husband's insurance covered it... but I was denied... I hadn't been followed on an exercised program for a year. I couldn't exercise.... I couldn't move. I finally broke my ankle... We were going to see my Mom last year... a couple months after my Dad died. We were leaving a restaurant.. and when I got into the car, I didn't raise my leg high enough. My ankle got caught in the car and I broke it. I was in a cast.. I couldn't use crutches. My arms weren't strong enough to hold me. When I would get up from tables when we would eat out. My hubby had to hold the table up, so I wouldn't tip it over. I would REALLY have to push myself up to get up. When we would get in the elevator or something... I would think I would fall... I could hardly stand. A lot of the time, when we would go to hospitals for my hubby's cancer. We would have to valet park. He would then push me around in a wheelchair. It was really sad !!
I got hold of myself. I can move. I can dress myself. I was in a 6X. Now I am in 1X in tops.. because of my boobs. In an 16 - 18 for my bottoms. I have been big breasted ALL my life. I went from a training bra to a DDD cup almost overnight. I 'was' a 52II. Now, I am a 40FF. I am a prime candidate for breast reduction surgery. I stand by the mailbox everyday waiting for the mail to come to see if I get anything from the insurance company.
I got hold of myself. I can move. I can dress myself. I was in a 6X. Now I am in 1X in tops.. because of my boobs. In an 16 - 18 for my bottoms. I have been big breasted ALL my life. I went from a training bra to a DDD cup almost overnight. I 'was' a 52II. Now, I am a 40FF. I am a prime candidate for breast reduction surgery. I stand by the mailbox everyday waiting for the mail to come to see if I get anything from the insurance company.
Going back to the chemotherapy. I am bald. I wear wigs. I lost my hair a long time ago. Talking about different hair styles and colors. I wish I could get a human hair wig. They cost over $200 and we can't afford it. I am happy with my wigs. They do get very hot in the summer.
My husband, Roy, and I will be married 10 years on June 19. We both have been married before. I wasn't able to have children. The chemo cooked my ovaries. I have twin nieces and two nephews. I treat them like they are my own when I see them.
Roy was diagnosed with sebaceous cell carcinoma two years after we were married. It started on his lower eye lid. Long story short... he lost his eye... he has a prosthesis. He had radiation. He had surgery and had a total neck dissection and his lymph nodes removed at Barnes Jewish hospital in St. Louis.
He remains in remission and he is 5 years out !! YAY !!
That is a lot !! lol If you have any questions.... ask away....
When you have time, I would like to know more about you!
6/13/10~
I still have the bipolar, but I am only on a mood stabilizer. I take sleeping meds, but that is it. My doctor is really pleased with me. I am not on any anxiety medicine or anything. My weight loss has really helped my over all well being.
I was a diabetic. I went off all of my diabetic medicine. My last A1C was 7.9. I couldn't believe it. I am back on medicine. I was disappointed. But, I have to be watched very closely.
I wished my white count was higher. But, it isn't. I see my hematologist in 10 days. I will see what she wants to do.
I am glad we have reconnected. I am missed you!!
9/10/10~
My primary care doctor put me on Vitamin D. I was put on 20,000 IU's for 20 days. Today I take 4,000 IU's a day. You can buy it over the counter when it come's time for you to be on it. It should help you! Remember, I told you!! Do you take a multi-vitamin?? Go to Wal-Mart or somewhere and just get any generic vitamin... it would be good for you and Chuck, too.
Don't know anything about the Epstein Barr virus. I hope you start to feel better.
I had my breast reduction surgery last Wednesday, September 1. I am doing great. I am teeny weenie now !! LOL I am really little... but I am so happy. I still have my nipple protectors on and I am wearing a compression bra. My thingies on my nipples are sewn on and will probably come off next Tuesday. My nipples are a skin graph and they have to be protected for an extra while. He doesn't want anything rubbing against them.
9/14/10 ~
Thanks for the email. I am very interested in Juice Plus+. Right now, I am on dial-up.. cough.. cough. We are getting high-speed this Wednesday. So, I can't watch your video at this time. I did take Juice Plus+ about 5 - 6 years ago. A friend of mine last week and just told me that I needed to take it. But, to be honest, I don't trust her. Isn't that awful. She just wants my debit card number.
I have a series of health problems. I am auto immune. I was diagnosed with Wegner's Granulomatois back in 1985. http://en.wikipedia.org/wiki/Wegener%27s_granulomatosis http://www.mayoclinic.com/health/wegeners-granulomatosis/DS00833
http://www.medicinenet.com/wegeners_granulomatosis/article.htm
A few articles for you to read. It is very rare. I got really sick and they couldn't figure out what was wrong with me. My doctor's finally did a chest x-ray and found that I had over 20 lesions in my lungs. I had an open lung biopsy. I was diagnosed with Wegners Granulomatosis. It is treated with chemotherapy (orally) and prednisone. I take Methotrexate only on Saturday and prednisone 2.5 mgs everyday. I have been in remission for over 20+ plus years. I never had kidney involvement. You wouldn't know anything was wrong with me, by looking at me.
I did gain a lot of weight. I used to weigh over 400 lbs. In October of this year, I will have maintained my 200 lb. weight loss for a year. Something I am very proud of. I had to walk with a walker, have a raised toilet seat and have help to get dressed. I was a mess. I tried for gastric bypass but I was denied. My primary physician didn't follow me on a exercise program for 6 months. I couldn't exercise. I couldn't move. My legs wouldn't support my body weight. I could hardly walk. I got hold of myself. I started taking little walks. I started out from walking from the couch to the front door. I would do that twice a day. I had to start moving. I started slowly. My refrigerator was my best friend. My husband would have to help me in the shower because I couldn't stand. We had a shower bench, but, then I couldn't get up.
Well, I started moving ! I got hold of myself. It was HARD. I had to struggle. I tried so many diets. From Jenny Craig, Weight Watchers, Dr. Atkins, The South Beach and more..... Nothing worked. But today, I am at 200 lbs. I am 5'8". I would like to loose 30 more lbs. I just had a breast reduction surgery two weeks ago. I feel so much better about myself. I got myself going to the gym. I was 'doing' the treadmill, the bicycle and the elliptical machine. I was really toning up. But, my skinny friends told me that I looked so good that I didn't need to go. So, I stopped. Let me tell you that I need to get back. I have gained weight and feel so sluggish.
I am back to being a borderline diabetic. My cholesterol was up and my doctor wanted to put me on medicine, but I never had it filled. I think my cholesterol was 195. I don't remember what it was 3 months ago.
I was an insulin dependent diabetic when I was over 400 lbs. My triglyceride's were over 700. I am really lucky to be alive today.
I am also bipolar. I have never been depressed, but I seem to be more maniac. My bipolar is so much more controlled since I have lost my weight. I am only on a mood stabilizer. I also take sleeping medicine.
As far as some measurements in my bust. I was a 52 II. Before my surgery I was a 40FF. I think I am a 38B cup now. I will know more tomorrow after I see my plastic surgeon. I use to wear in tops a size 6X. My tops are now a 1X. But now that I have had my surgery, I think an XL will fit fine. When I was over 400 lbs., I could only find sweatpants. They were size 8X. I am now done to a 18/20. I have so much extra loose flab from weighing so much in my tummy area. Although since my breast reduction surgery, I now *giggles* see a roll of fat that I didn't see before. My boobs covered it up! LOL Now, I want to get back to the gym to work on that. Any suggestions?!?
9/16/10 ~
Thanks so much for the caring call and the lovely card and gifts. You're a lovely, sweet and caring woman....
9/28/10 ~
AHA!!! I saw the truck and all those trees; no wonder I couldn't see
your house LOL This is so cool!!!! Your area looks really
peaceful... and I can see why you were blown away at all the houses
and roads around mine. Very cool!! This was taken on either a
Thursday evening or Friday because the garbage cans are out (one
recycle). I used to park in the side car port before Mom sold her
Blazer. Then when I was home from work, and took my parents to most
of their appts, I convinced them it was better to put my car in the
garage because I had a bigger car and front seat *snicker* it is
really, but I got the garage YAY! LOL
your house LOL This is so cool!!!! Your area looks really
peaceful... and I can see why you were blown away at all the houses
and roads around mine. Very cool!! This was taken on either a
Thursday evening or Friday because the garbage cans are out (one
recycle). I used to park in the side car port before Mom sold her
Blazer. Then when I was home from work, and took my parents to most
of their appts, I convinced them it was better to put my car in the
garage because I had a bigger car and front seat *snicker* it is
really, but I got the garage YAY! LOL
Monday, October 4, 2010
A Long Update
Just so much going on! I have been shopping and gearing up for the fall and winter months. Last year I was wearing in jeans a 22 to a 24. This year I am in 18's. So, I have to buy new jeans. I just bought one pair so far and they are skinny jeans! I want to buy two more pairs, one boot cut and I am not sure of the other style I want. In tops and shirts, I was a 2X last year and this year I am a 1X. So, I will be getting by pretty much in my sweaters and tops. But, of course, I want some more. So, I got a couple more tops. But, I can't wear V necks at all. I tried on a couple sweaters in V neck styles for a switch, and NO go. I don't have boobs to fill them out. Which is okay, I have found other cute things. I also got sports bras. I got them in lots of colors. I took pictures of all of what I bought, but I don't know how to upload them. I can't find on my computer where to put the card and there is no USB cable or anything. No place on the camera for one. So, I hope I am not disappointed.
My mom decided that she can't make the trip from Florida to St. Louis for Thanksgiving. She said that she just can't sit in an airplane with her knees bent for that long and that she will have a hard time going up and down stairs. So, I decided to go down there to see her. I need to see how she is doing. She was still in the rehab center when I left in August. I called my brothers to see if they could help me with my plane fare. My brother, David said he would help, which I was very grateful. Steve called me on Friday and was just so mean and talking so mean about my mom and said to me are you still there, I don't want to be talking to dead air. He was practically yelling at me. So, I didn't feel comfortable at that time to ask him. But, I will ask him to help me. I am going as cheap as I can since I am buying my ticket this time with the help of my brothers. I am changing planes this time. I am flying Southwest but I am not flying direct. On the way down, I fly up to Chicago Midway and switch to another Southwest plane and then fly to Fort Meyers. On the way home, I leave Fort Meyers, fly over to Orlando and then into St. Louis. My air fare was $109 each way but with taxes and all of that stuff it was $250.00 round trip. I leave on November 9 and get home on November 17, Tuesday to a Wednesday.
On the boob front, boy do I have a mess! I am still taking the antibiotics, the infection is gone, but now I have a yeast infection and it is just plain gross looking! I literally have holes under each boob from the lack of blood flow, so that is just gong to have to fill in on its own. I have my week follow up tomorrow with my surgeon, so I will be interested to see what he says this time. My mom still doesn't know about this, so do you think she will notice ?!?!?! I am really trying hard to loose about 5 - 7 pounds before I leave. That would make me really happy !! I am eating, but I am not eating to where I am uncomfortable.
So, what is new going on with you ??
My mom decided that she can't make the trip from Florida to St. Louis for Thanksgiving. She said that she just can't sit in an airplane with her knees bent for that long and that she will have a hard time going up and down stairs. So, I decided to go down there to see her. I need to see how she is doing. She was still in the rehab center when I left in August. I called my brothers to see if they could help me with my plane fare. My brother, David said he would help, which I was very grateful. Steve called me on Friday and was just so mean and talking so mean about my mom and said to me are you still there, I don't want to be talking to dead air. He was practically yelling at me. So, I didn't feel comfortable at that time to ask him. But, I will ask him to help me. I am going as cheap as I can since I am buying my ticket this time with the help of my brothers. I am changing planes this time. I am flying Southwest but I am not flying direct. On the way down, I fly up to Chicago Midway and switch to another Southwest plane and then fly to Fort Meyers. On the way home, I leave Fort Meyers, fly over to Orlando and then into St. Louis. My air fare was $109 each way but with taxes and all of that stuff it was $250.00 round trip. I leave on November 9 and get home on November 17, Tuesday to a Wednesday.
On the boob front, boy do I have a mess! I am still taking the antibiotics, the infection is gone, but now I have a yeast infection and it is just plain gross looking! I literally have holes under each boob from the lack of blood flow, so that is just gong to have to fill in on its own. I have my week follow up tomorrow with my surgeon, so I will be interested to see what he says this time. My mom still doesn't know about this, so do you think she will notice ?!?!?! I am really trying hard to loose about 5 - 7 pounds before I leave. That would make me really happy !! I am eating, but I am not eating to where I am uncomfortable.
So, what is new going on with you ??
Thursday, September 23, 2010
Feeling Like Poo.....
Before my breast reduction surgery my primary care physician did some blood work. My cholesterol was 197. It is slowly creeping up and I know why. I have this thing about chicken. It has to be cooked. So, I have been having crispy chicken in my salads when we go to our favorite diner, which has been a lot this year. So, my doctor started me on medicine for my cholesterol and the major side effect is feeling like you have the flu. I started it five days ago, and I feel like I have been run over by a truck!! I don't have a fever or anything. My muscles in my legs hurt so bad that I had to take a pain pill last night. My arms hurt, my feet hurt, my boobs hurt, everything hurts. I called this morning and she said to stop it immediately. I didn't take it this morning. I am suppose to stop it for ten days. If I get better, which I hope I do because I feel like crap, then it is the medicine. If, I don't get better then I have the flu!! It has to be the medicine. I saw my hematologist (blood doctor) yesterday. She monitors my anemia and my white blood count was not alleviated, but, I am still anemic, which I will always be from the chemotherapy. So, that is the latest and greatest. If, I am not around for the next few days, you know why!! I sure hope I wake up feeling much better tomorrow.
Sunday, September 19, 2010
Who Is Dawn ?
So, who is Dawn?!? I keep telling you I will tell you more about me, so here goes........
I am 47 years young. :) I have been married 3 times. My first marriage, I can't remember when it was. It was a real long time ago. It only lasted for 7 months. I was very sick with this auto-immune disease that I keep telling you about. It is called Wegeners Granulomatosis. Never heard of it have you? Nobody has. It is really rare. Only 1 in 20,000 - 30,000 ore more people are diagnosed with it. I was one of them. The treatment for this disease is Prednisone (which is a steroid) and Methotrexate (which is chemotherapy). So, back to the first marriage. I gained a lot of weight with the Prednisone when I was first diagnosed. I had a HUGE moon face. But, I wasn't this way when we first met. I was blonde hair, blue eye, thin and attractive (big boobs ~ lol). What happened to the marriage....... he had an affair with a woman who worked for my dad !! Yes, you read that right. He worked for my dad and had an affair with his secretary. He didn't like my appearance after what the medicine did to my body. So, I filed for a divorce. Once you have been cheated on, how could you trust that person again. Never in my book !!!!!!!
During that time, I started loosing my hair and also was told that the chemotherapy (which was taken orally) had made me sterile. I was not going to be able to have children. I was the only daughter in my family. This broke my heart. I was not giving my mother and father grandchildren. My mother was not going to be able to follow me through my pregnancy. Give me advice, be there through the nine months with me, be there during the delivery. I get teary eyed. It happened for a reason, I am still trying to find out.
I lost my job because I was in and out of the hospital too much. With the help of my Dad and close family friend, I went through arbitration and got my job back, because they didn't give me written notice. My boss just called my parents and told them I was fired because the fact I was in the hospital too much. I fought back and won. During this time, my Uncle made it possible for me to live in my two bedroom apartment and pay the amount of rent I could afford. Thank you, John !
I lived on my own for the next 5 years and dated off and on. When you last expect anything, my best friend, Diana, and I went out for a few drinks and we knew of these guys, but really didn't know them. Long story, they were nice and Bob asked me for my phone number. The next weekend, Bob calls and ask me out. Well, after 6 months of dating, he ask me to marry him. He had been married before, he was 10 years older than I was and his first wife had died of breast cancer. So, it wasn't our first marriage for either of us and we didn't have any children. We got married in 1989. In late 1999, things were just not right. He had been a verbal abuser most of the marriage. He and his family were having family business problems financially. But, he wasn't coming home at night. He started coming home later and later. We lived about 30 - 40 minutes from the family business office. Well, long story short.... remember my best friend, Diana (who was my maid of honor for all three of my marriages, including my marriage to Bob) ?!?!?!?! Bob and Diana were having an affair !!!!!!!!!!!!! She was MY BEST FRIEND !!!!!! Yes, I was cheated on AGAIN !! My auto immune disease was in remission and not active. But, by this time, I was in full menopause and my hair on my head had fallen out and I was wearing a wig. Was it my appearance again ?!?!?! I will never know. I was 35 when this happened. They did get married!
I moved from Illinois to Missouri !! My parents had retired and lived in Florida. I was the only left in the college town. My family was gone. I wanted to live somewhere that I was wanted and loved. I moved to Missouri where my brothers live. I had family here. I have SIL's, nieces and nephews. I hated the metro-area and being by myself. Bob and Diana were living their life and here I was in a metro-area that I didn't know anyone, but family. I got a job, found an apartment and called it home !!!! After a year and a half, I met my third husband and last husband, Roy !! He is kind, gentle and warm. We are both good for each other. What one excels in the other doesn't. We go hand in hand. My family would agree. Roy had been married before. His wife had two kids from a prior marriage that didn't treat Roy very nice at all and his wife was looking for a sugar daddy. They were married 11 months and she got everything, except the house he was living in. He didn't have any kids either. So, that makes the two of us !! Just until March of this year, when we rescued Pedro !! :)
Back to me and being auto immune. I hate it !! It is not fun. I can't be around sick people. I can get sick very easy. I have to get the flu shot every year. If I get the flu, it will put me in the hospital. How was I diagnosed, I had developed a dry cough. At the time, I was not a smoker. So, after many... many blood tests for every possible test out there. The doctors and specialists decided to do a chest x-ray. Guess what ?!?! Within, 10 minutes, I was scheduled for an open lung biopsy to be done the next day. I had over 20 lesions on my lungs, both sides. It could of been cancer, it could of been a number of things, or it could of been this really rare disease called Wegeners Granulomatosis.
All is good these days. I see a pulmonary specialist every six months that does sophisticated blood test that get sent off to Mayo Clinic. During all of this time with being on the prednisone and going through early menopause, I was also diagnosed with being Bipolar. All is good there now, too. After loosing all of my weight that I gained since being married to Roy, from being on a medication that made me eat day and night, (I told my doctor that I refused to take that medicine and to change it to something else!) I am off all my medication, except, a mood stabilizer.
So, early menopause, was not fun. Night sweats.......... whewwwwwwwww, I am glad I am done with that part of my life. Mood swings... check. Been through them. The only thing that was positive that I can think of, I quit having periods !! That part was so nice !! I haven't had a period in forever. I always get asked, when was your last period. I just laugh. I don't remember. It has been over half of my life.
I have also mentioned my hair. Yep, it is gone. But, I in my pictures, you always see hair, right ?!?!? :) Wigs.com....., the Raquel Welch brand is what I like. I am actually wearing a new one. If you go to the site, it is called "Cinch". I love it !! :) Nice thing about wigs, I just plop it on my head in the morning and go. No, early morning showers, etc. I shower at night, most nights, and get up in the morning, wash my face, brush my teeth, get dressed and put my hair on. That simple. No blow drying, no styling products, no flat irons, no nothing. I do shampoo my head, though, in case if you were wondering. *giggles*
So, now, I just recently had a breast reduction !! I am doing great. Several plastic surgeons would recommend it or would do it for me. Why, because of the chemotherapy that I take orally on Saturdays. I am anemic and I don't heal very good. But, I had Dr. T., that said he felt good about it, and that he would do it for me. They gave me steroids during the surgery and antibiotics. He also gave me antibiotics after the surgery. I healed remarkably very well. Now, I wonder why I didn't want this on FB or why I didn't tell my Mom or my aunt ?? My Mom was so against me having it done. She and I argued over it repeatably while I was in Florida while she had her knee replaced. My aunt didn't want me to have it done because she didn't want the auto immune disease to come back. I have cousins on my FB, that would get back to my aunt and Mom. I am never going to tell my Mom, unless she notices it. She has to much to worry about. It is just best they don't find out. I am fine. The surgery went well. Everything is healed up. Nothing went wrong. So, she doesn't need to know, neither does my aunt.
About my weight, I have always had weight issues. But, I did weigh over 400 lbs., while Roy and I have been married do to medication. While weighing over 400 lbs, I was a mess. I had to walk with a walker, I couldn't dress myself, I needed help while I was in the shower, the list goes on and on. I tried to get gastric bypass surgery and I was denied. I thought my life was coming to an end. I was denied because my primary care physician didn't follow me on a exercise program for a year. Well, I couldn't move !!!! I couldn't stand. I could hardly wipe myself when I went to the bathroom. I was more than morbidly obese !! I had knee problems. I was told I was going to have to have my knees replaced. I tried every diet plan out there. Well, I finally got hold of myself. I started walking to the back door and back. Then I started walking to the garage outside door and back, then to the mailbox and back. But, this was a two year process. It didn't happen over night. I am now under 200 lbs. I will get there. October of this year, I will have keep the 200 lbs off for one year. That is quite an accomplishment if I say so. Would I like to loose more, you bet I would !! Once, I am released from my doctor, which should be in a week and a half, I will be able to exercise. I want to look the best I can. I guess after having two failed marriages and then weighing over 400 lbs., I am kind of self conscious. Now, I really am, since I had my breast reduction surgery !! I might have to have more plastic surgery to get rid of the excess skin. I have lost over 20 10 lb bag of potatoes. That is a lot of potatoes !! LOL
If I kept you attention this long, thanks for reading my story. If you have any questions, please feel free to ask.
I am 47 years young. :) I have been married 3 times. My first marriage, I can't remember when it was. It was a real long time ago. It only lasted for 7 months. I was very sick with this auto-immune disease that I keep telling you about. It is called Wegeners Granulomatosis. Never heard of it have you? Nobody has. It is really rare. Only 1 in 20,000 - 30,000 ore more people are diagnosed with it. I was one of them. The treatment for this disease is Prednisone (which is a steroid) and Methotrexate (which is chemotherapy). So, back to the first marriage. I gained a lot of weight with the Prednisone when I was first diagnosed. I had a HUGE moon face. But, I wasn't this way when we first met. I was blonde hair, blue eye, thin and attractive (big boobs ~ lol). What happened to the marriage....... he had an affair with a woman who worked for my dad !! Yes, you read that right. He worked for my dad and had an affair with his secretary. He didn't like my appearance after what the medicine did to my body. So, I filed for a divorce. Once you have been cheated on, how could you trust that person again. Never in my book !!!!!!!
During that time, I started loosing my hair and also was told that the chemotherapy (which was taken orally) had made me sterile. I was not going to be able to have children. I was the only daughter in my family. This broke my heart. I was not giving my mother and father grandchildren. My mother was not going to be able to follow me through my pregnancy. Give me advice, be there through the nine months with me, be there during the delivery. I get teary eyed. It happened for a reason, I am still trying to find out.
I lost my job because I was in and out of the hospital too much. With the help of my Dad and close family friend, I went through arbitration and got my job back, because they didn't give me written notice. My boss just called my parents and told them I was fired because the fact I was in the hospital too much. I fought back and won. During this time, my Uncle made it possible for me to live in my two bedroom apartment and pay the amount of rent I could afford. Thank you, John !
I lived on my own for the next 5 years and dated off and on. When you last expect anything, my best friend, Diana, and I went out for a few drinks and we knew of these guys, but really didn't know them. Long story, they were nice and Bob asked me for my phone number. The next weekend, Bob calls and ask me out. Well, after 6 months of dating, he ask me to marry him. He had been married before, he was 10 years older than I was and his first wife had died of breast cancer. So, it wasn't our first marriage for either of us and we didn't have any children. We got married in 1989. In late 1999, things were just not right. He had been a verbal abuser most of the marriage. He and his family were having family business problems financially. But, he wasn't coming home at night. He started coming home later and later. We lived about 30 - 40 minutes from the family business office. Well, long story short.... remember my best friend, Diana (who was my maid of honor for all three of my marriages, including my marriage to Bob) ?!?!?!?! Bob and Diana were having an affair !!!!!!!!!!!!! She was MY BEST FRIEND !!!!!! Yes, I was cheated on AGAIN !! My auto immune disease was in remission and not active. But, by this time, I was in full menopause and my hair on my head had fallen out and I was wearing a wig. Was it my appearance again ?!?!?! I will never know. I was 35 when this happened. They did get married!
I moved from Illinois to Missouri !! My parents had retired and lived in Florida. I was the only left in the college town. My family was gone. I wanted to live somewhere that I was wanted and loved. I moved to Missouri where my brothers live. I had family here. I have SIL's, nieces and nephews. I hated the metro-area and being by myself. Bob and Diana were living their life and here I was in a metro-area that I didn't know anyone, but family. I got a job, found an apartment and called it home !!!! After a year and a half, I met my third husband and last husband, Roy !! He is kind, gentle and warm. We are both good for each other. What one excels in the other doesn't. We go hand in hand. My family would agree. Roy had been married before. His wife had two kids from a prior marriage that didn't treat Roy very nice at all and his wife was looking for a sugar daddy. They were married 11 months and she got everything, except the house he was living in. He didn't have any kids either. So, that makes the two of us !! Just until March of this year, when we rescued Pedro !! :)
Back to me and being auto immune. I hate it !! It is not fun. I can't be around sick people. I can get sick very easy. I have to get the flu shot every year. If I get the flu, it will put me in the hospital. How was I diagnosed, I had developed a dry cough. At the time, I was not a smoker. So, after many... many blood tests for every possible test out there. The doctors and specialists decided to do a chest x-ray. Guess what ?!?! Within, 10 minutes, I was scheduled for an open lung biopsy to be done the next day. I had over 20 lesions on my lungs, both sides. It could of been cancer, it could of been a number of things, or it could of been this really rare disease called Wegeners Granulomatosis.
All is good these days. I see a pulmonary specialist every six months that does sophisticated blood test that get sent off to Mayo Clinic. During all of this time with being on the prednisone and going through early menopause, I was also diagnosed with being Bipolar. All is good there now, too. After loosing all of my weight that I gained since being married to Roy, from being on a medication that made me eat day and night, (I told my doctor that I refused to take that medicine and to change it to something else!) I am off all my medication, except, a mood stabilizer.
So, early menopause, was not fun. Night sweats.......... whewwwwwwwww, I am glad I am done with that part of my life. Mood swings... check. Been through them. The only thing that was positive that I can think of, I quit having periods !! That part was so nice !! I haven't had a period in forever. I always get asked, when was your last period. I just laugh. I don't remember. It has been over half of my life.
I have also mentioned my hair. Yep, it is gone. But, I in my pictures, you always see hair, right ?!?!? :) Wigs.com....., the Raquel Welch brand is what I like. I am actually wearing a new one. If you go to the site, it is called "Cinch". I love it !! :) Nice thing about wigs, I just plop it on my head in the morning and go. No, early morning showers, etc. I shower at night, most nights, and get up in the morning, wash my face, brush my teeth, get dressed and put my hair on. That simple. No blow drying, no styling products, no flat irons, no nothing. I do shampoo my head, though, in case if you were wondering. *giggles*
So, now, I just recently had a breast reduction !! I am doing great. Several plastic surgeons would recommend it or would do it for me. Why, because of the chemotherapy that I take orally on Saturdays. I am anemic and I don't heal very good. But, I had Dr. T., that said he felt good about it, and that he would do it for me. They gave me steroids during the surgery and antibiotics. He also gave me antibiotics after the surgery. I healed remarkably very well. Now, I wonder why I didn't want this on FB or why I didn't tell my Mom or my aunt ?? My Mom was so against me having it done. She and I argued over it repeatably while I was in Florida while she had her knee replaced. My aunt didn't want me to have it done because she didn't want the auto immune disease to come back. I have cousins on my FB, that would get back to my aunt and Mom. I am never going to tell my Mom, unless she notices it. She has to much to worry about. It is just best they don't find out. I am fine. The surgery went well. Everything is healed up. Nothing went wrong. So, she doesn't need to know, neither does my aunt.
About my weight, I have always had weight issues. But, I did weigh over 400 lbs., while Roy and I have been married do to medication. While weighing over 400 lbs, I was a mess. I had to walk with a walker, I couldn't dress myself, I needed help while I was in the shower, the list goes on and on. I tried to get gastric bypass surgery and I was denied. I thought my life was coming to an end. I was denied because my primary care physician didn't follow me on a exercise program for a year. Well, I couldn't move !!!! I couldn't stand. I could hardly wipe myself when I went to the bathroom. I was more than morbidly obese !! I had knee problems. I was told I was going to have to have my knees replaced. I tried every diet plan out there. Well, I finally got hold of myself. I started walking to the back door and back. Then I started walking to the garage outside door and back, then to the mailbox and back. But, this was a two year process. It didn't happen over night. I am now under 200 lbs. I will get there. October of this year, I will have keep the 200 lbs off for one year. That is quite an accomplishment if I say so. Would I like to loose more, you bet I would !! Once, I am released from my doctor, which should be in a week and a half, I will be able to exercise. I want to look the best I can. I guess after having two failed marriages and then weighing over 400 lbs., I am kind of self conscious. Now, I really am, since I had my breast reduction surgery !! I might have to have more plastic surgery to get rid of the excess skin. I have lost over 20 10 lb bag of potatoes. That is a lot of potatoes !! LOL
If I kept you attention this long, thanks for reading my story. If you have any questions, please feel free to ask.
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